2020 round up Published: December 09, 2020 Category: General As we enter into December we start to think back on the year that we have had. We remember both the highs and lows that each of us have had personally, but especially those which have been shared due to COVID. We all sat in front…
Coronavirus Published: March 21, 2020 Category: General This blog is about the one thing that everyone is talking about – Covid 19. This virus and its surreal and unpredictable impact on our lives is unprecedented. I hope that in this blog I will be able to draw comparisons between what we are all feeling now…
Guilty, your honour Published: February 6, 2020 Category: General Guilt is a strange emotion and it has cropped up more and more as the months have passed. We are almost at 9 months since Ivy died and grief is still a huge part of our daily life and with that brings guilt. Guilt in the…
Celebrating through loss Published: December 31, 2019 Category: General Long read First of all, let me start by acknowledging that we are not the only ones who have been through tough times this year. I am sharing how we have spent the last month but this isn’t saying this is what you should do…
SMA awareness Published: September 26, 2019 Category: Global The 27th September is SMA awareness day in the UK this year, and to mark the day we thought that we would share a little bit of information about Spinal Muscular Atrophy. In particular we will talk about Type 1 as this is the condition that Ivy…
