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09-12-2020
2020 round up Published: December 09, 2020 Category: GeneralAs we enter into December we start to think back on the year that we have had. We remember both the highs and lows that each of us have had personally, but especially those which have been shared due to COVID. We all sat in front of our televisions as the first lockdown was announced, all of us joining together to protect one another. We clapped for the NHS on Thursday evenings, played pub quizzes in our living rooms and binged watched The Tiger King on Netflix.Each of us took our responsibility
21-03-2020
Coronavirus Published: March 21, 2020 Category: GeneralThis blog is about the one thing that everyone is talking about – Covid 19. This virus and its surreal and unpredictable impact on our lives is unprecedented. I hope that in this blog I will be able to draw comparisons between what we are all feeling now as we navigate our way through this unpredictable time to how we felt when Ivy was poorly and in her subsequent passing. I am by no means trying to turn this pandemic back on us or Ivy and say that what we went through is the
06-02-2020
Guilty, your honour Published: February 6, 2020 Category: General Guilt is a strange emotion and it has cropped up more and more as the months have passed. We are almost at 9 months since Ivy died and grief is still a huge part of our daily life and with that brings guilt. Guilt in the legal sense is an admission of doing something wrong or being found to have done something wrong. Guilt when we connect it with grief is an admission of feeling bad for doing .... well, anything it would seem. Seriously. It seems to affect so many
31-12-2019
Celebrating through loss Published: December 31, 2019 Category: General Long read First of all, let me start by acknowledging that we are not the only ones who have been through tough times this year. I am sharing how we have spent the last month but this isn't saying this is what you should do if you're ever in a tough situation. It's just our honest account of how we navigated December this year. Our December began with an advent calendar which let us light a candle for Ivy each day. It felt really special because I decided to give
26-09-2019
SMA awareness Published: September 26, 2019 Category: Global The 27th September is SMA awareness day in the UK this year, and to mark the day we thought that we would share a little bit of information about Spinal Muscular Atrophy. In particular we will talk about Type 1 as this is the condition that Ivy was diagnosed with. We wanted to start this post with a disclaimer. We are not medical professionals and do not claim to be experts in this condition. This post is our account of events, as well as an overview of the information that was conveyed
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